Tag: chronic-illness

  • Rare Diseases and Medical Mysteries

    February is Rare Disease Month, but February 28th (or 29th in a Leap Year) is Rare Disease Day, globally. Many of the rarest-of-rare are orphan diseases which have so few sufferers, there is limited incentive for pharmaceutical companies to fund R & D for treatments and cures. Addison’s Disease is merely somewhat rare compared to…

  • Writing and Publishing with a Chronic Illness

    Academic research thrives under particular conditions. Material resources, time, reliable child care, access to library and archival materials, and the good health to pursue the work in a sustained way. I have all but one of these. My health isn’t terrible, just not great, some days. Today’s one of those days. A week of increasingly…